List Of Health Registries

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List of Registries National Institutes of Health (NIH)

(7 days ago) WebRegistries can provide health care professionals and researchers with first-hand information about people with certain conditions, both individually and as a group, and over time, to increase our understanding of that condition. Some registries collect …

https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries

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Registries fact sheet 2022 - American Heart Association

(9 days ago) WebRegistries play an essential role in providing meaningful, actionable data about the healthcare needs and the services used by populations of patients that traditionally have …

https://www.heart.org/-/media/Files/About-Us/Policy-Research/Fact-Sheets/Clinical-and-Post-Clinical-Care/Clinical-Registries-Fact-Sheet.pdf

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Public Health Registries Reporting - Centers for Disease Control …

(9 days ago) WebPublic Health Registries Reporting. Public health registries could include, but are not limited to: birth defects registries, chronic disease registries, and traumatic injury …

https://www.cdc.gov/datainteroperability/publichealthoptions/PH-registries-reporting.html

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Disease Registries NIH Library

(6 days ago) WebDisease Registries. Disease registries are centralized databases for the collection of information of specific diseases, for example cancer registries (Cromley & McLafferty, …

https://www.nihlibrary.nih.gov/resources/subject-guides/health-data-resources/disease-registries

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Primary registries - World Health Organization (WHO)

(Just Now) WebPrimary registries in the WHO registry network. Primary Registries in the WHO Registry Network meet specific criteria for content, quality and validity, accessibility, unique identification, technical capacity …

https://www.who.int/clinical-trials-registry-platform/network/primary-registries

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What is a registry? What are the uses of information in …

(4 days ago) WebNational Institutes of Health. The purpose of these registries is to determine the incidence of IDDM in defined populations, and to identify persons for subsequent enrollment in case- …

https://ncvhs.hhs.gov/wp-content/uploads/2022/11/FAQ-on-Public-Health-Registries.pdf

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Registries and Matching Services for Clinical Trials

(7 days ago) WebIndividuals age 18 or older take a 10-minute online test and join a registry of people who may be contacted for future research studies of the aging brain. A service, funded by …

https://www.nia.nih.gov/health/clinical-trials-and-studies/registries-and-matching-services-clinical-trials

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RaDaR - National Institutes of Health

(3 days ago) WebRaDaR provides step-by-step guidance and tools for building registries based on good data practices. The Rare Diseases Registry Program (RaDaR) website was created to provide …

https://registries.ncats.nih.gov/

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21 Century Patient Registries - Agency for Healthcare …

(7 days ago) Web21st Century Patient Registries . Registries for Evaluating Patient Outcomes: A User’s Guide 3 rd Edition, Addendum Prepared for: Agency for Healthcare Research and Quality . U.S. …

https://effectivehealthcare.ahrq.gov/sites/default/files/registries-guide-3rd-ed-addendum-research-2018.pdf

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Patient Registries - Toolkit - National Institutes of Health

(5 days ago) WebPatient Registries. In the context of therapy development, a patient registry (also called a disease registry) is a database that collects and stores information about patients …

https://toolkit.ncats.nih.gov/module/discovery/starting-a-patient-registry-natural-history-study-database/patient-registries/

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Registry of Patient Registries (RoPR): Overview Effective Health …

(5 days ago) WebDevelopment of the RoPR Background: A patient registry is an organized system that uses observational research methods to collect data for the scientific …

https://effectivehealthcare.ahrq.gov/products/registry-of-patient-registries/overview

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5 things to know about clinical data registries

(7 days ago) WebData are collected via secure online portals or electronic health record (EHR) systems. As data enter the clinical data registry, quality checks are performed to ensure that the data …

https://www.ama-assn.org/practice-management/digital/5-things-know-about-clinical-data-registries

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National Program of Cancer Registries (NPCR) CDC

(1 days ago) WebLast Reviewed: April 9, 2024. Source: Division of Cancer Prevention and Control, Centers for Disease Control and Prevention. CDC's National Program of Cancer Registries …

https://www.cdc.gov/cancer/npcr/index.htm

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Disease Registries Agency for Healthcare Research and Quality

(1 days ago) WebAgency for Healthcare Research and Quality. 5600 Fishers Lane Rockville, MD 20857 Telephone: (301) 427-1364

https://www.ahrq.gov/topics/disease-registries.html

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Registries for Evaluating Patient Outcomes: A User's Guide 4th …

(5 days ago) WebRegistries; Operating Registries; and Evaluating Registries. The first three sections provide basic information on key areas of registry development and operations, highlighting the …

https://effectivehealthcare.ahrq.gov/sites/default/files/pdf/registries-evaluating-patient-outcomes-4th-edition.pdf

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The role of registries in improving health and bridging healthcare

(3 days ago) WebHealth registries are organized systems that collect data on individuals with a particular disease, condition or exposure. The aim of this narrative review was to provide …

https://journals.sagepub.com/doi/full/10.1177/03000605241233140

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Put Your Clinical Data to Work With a Registry AAFP

(5 days ago) WebA registry is a population health tool that excels at organizing data for a group of patients and providing timely, actionable reports that can be used for care management and …

https://www.aafp.org/pubs/fpm/issues/2021/1100/p21.html

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What is a disease/immunization registry? HealthIT.gov

(2 days ago) WebThe Basics. The Agency for Healthcare Research and Quality defines a disease/immunization registry as "a tool for tracking the clinical care and outcomes of a …

https://www.healthit.gov/faq/what-diseaseimmunization-registry

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Patient Registries - Registries for Evaluating Patient …

(5 days ago) WebThe purpose of this document is to serve as a guide for the design and use of patient registries for scientific, clinical, and health policy purposes. Properly designed and executed, patient registries can …

https://www.ncbi.nlm.nih.gov/books/NBK208643/

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Registries Made Simple AAFP

(5 days ago) WebThis video reviews the purpose, functions and benefits of a patient registry and gives advice on getting started. 2. Select a registry system. A registry may take a variety of forms, …

https://www.aafp.org/pubs/fpm/issues/2011/0500/p11.html

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Interfacing Registries With Electronic Health Records

(5 days ago) WebWith national efforts to invest in electronic health record (EHR) systems and advance the evidence base in areas such as effectiveness, safety, and quality through registries and other studies, interfacing registries with …

https://www.ncbi.nlm.nih.gov/books/NBK208625/

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Developing a Registry of Patient Registries: Options for the …

(7 days ago) WebAuthor Affiliations. Richard E. Gliklich, M.D. 1 Michelle B. Leavy, M.P.H. 1 Daniel M. Campion, M.B.A. 1 1 Outcome DEcIDE Center.. Structured Abstract. …

https://effectivehealthcare.ahrq.gov/products/registry-of-patient-registries-development/research

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