Consent In Health Data Processing

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Consent - General Data Protection Regulation (GDPR)

(1 days ago) People also askIs consent a legal basis for data processing?Subsequently, some international research organizations (Global Alliance for Genomics and Health 2019) still see broad consent as a legal basis for data processing. In addition to these contradicting viewpoints expressed by GDPR experts, even deeper discrepancies emerge when comparing the GDPR and research ethics regulations.Controversies between regulations of research ethics and link.springer.comShould data processing consent be privileged from research ethics consent?Upon analysing these laws (along with other relevant laws and regulations that also govern health research), we then argue that there is some merit in privileging data processing consent, but that this nevertheless should be distinguished from research ethics consent for reasons of conceptual clarity.Should consent for data processing be privileged in health research? A academic.oup.comShould consent be a legal basis for Health Research?However, when it comes to considering whether consent should serve as the lawful basis for processing data in the health research context, a fair degree of policy and regulatory divergence emerges.Should consent for data processing be privileged in health research? A academic.oup.comDo you need explicit consent for Health Research?The [Health Research] Regulations make explicit consent the default position for processing personal data for health research. In other words, a health researcher planning to use an individual’s information for health research must obtain the explicit consent of the individual to do so.Should consent for data processing be privileged in health research? A academic.oup.comFeedbackOxford Academichttps://academic.oup.com/idpl/article/10/2/117/5757981Should consent for data processing be privileged in health …Divergence across a spectrum of recent lawsThe three national laws discussed in the previous section represent different approaches to regulating the use of sensitive data in the context of health research, …Finding an appropriate balance among various stakeholder interests See moreIntroductionThe GDPR grants some exemptions from its requirements when personal data are processed for scientific research purposes.3 Provided appropriate … See more

https://gdpr-info.eu/issues/consent/#:~:text=Consent%20must%20be%20freely%20given%2C%20specific%2C%20informed%20and,outcome%20of%20that%20choice%20renders%20the%20consent%20invalid.

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Ethical Issues in Consent for the Reuse of Data in Health Data

(3 days ago) WebThe consent for reuse issue is significant for three reasons in both the general context of health research and the specific context of where this is carried out via a data …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7862505/

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GDPR and healthcare: Understanding health data and …

(6 days ago) WebGDPR prohibits processing of these forms of health data unless one of the three conditions below would apply. The data subject must have given …

https://www.pega.com/insights/articles/gdpr-and-healthcare-understanding-health-data-and-consent

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How to Design Consent for Health Data Research? An Analysis of

(6 days ago) WebAnd in the legal sphere, the GDPR considers consent as only one justification for data-based research among others. General public interest—and public …

https://academic.oup.com/phe/advance-article/doi/10.1093/phe/phad025/7470702

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Information Privacy in Healthcare — The Vital Role of Informed …

(Just Now) WebThis means that consent which is relied upon for the lawful data processing of health data must be explicit consent. In the practical delivery of patient healthcare, …

https://brill.com/view/journals/ejhl/30/4/article-p469_5.xml

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Controversies between regulations of research ethics and …

(3 days ago) WebFirst, in contrast to the research ethics guidelines, the GDPR does not give consent any predefined priority for health data processing. Consent is only one among …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8595272/

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Digitizing the Informed Consent Process: A Review of the …

(3 days ago) WebAs the Directorate-General pointed out, IC in the context of the CTR is a safeguard for the participants, and not a legal basis for data processing . Under the …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9174519/

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Controversies between regulations of research ethics and

(Just Now) WebFirst, in contrast to the research ethics guidelines, the GDPR does not give consent any predefined priority for health data processing. Consent is only one among …

https://link.springer.com/article/10.1007/s11019-021-10060-1

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From “Informed” to “Engaged” Consent: Risks and Obligations …

(1 days ago) Webconsent to health data repositories. First, the regula-tory version of broad consent differs in certain ways from how broad consent has been discussed and used in practice, and …

https://journals.sagepub.com/doi/pdf/10.1177/1073110520917007

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Explicit consent and alternative data protection processing …

(1 days ago) WebThis begins with an overview of the normative values and limitations of consent, highlighting the partially overlapping but not entirely identical roles of consent in health research and …

https://www.research.ed.ac.uk/en/publications/explicit-consent-and-alternative-data-protection-processing-groun

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Specific measures for data-intensive health research without …

(4 days ago) WebHowever, in data-intensive health research it is often regarded impracticable or impossible to obtain (meaningful) consent [2–5]. A common misunderstanding of current European …

https://www.nature.com/articles/s41431-023-01471-0.pdf

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The protection of personal data in health information systems

(5 days ago) Web2 THE PROTECTION OF PERSONAL DATA IN HEALTH INFORMATION SYSTEMS – PRINCIPLES AND PROCESSES FOR PUBLIC HEALTH 2. History of data protection …

https://apps.who.int/iris/bitstream/handle/10665/341374/WHO-EURO-2021-1994-41749-57154-eng.pdf?sequence=1

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(PDF) Should consent for data processing be privileged in health

(7 days ago) WebPDF On May 1, 2020, Edward S Dove and others published Should consent for data processing be privileged in health research? A comparative legal analysis Find, read …

https://www.researchgate.net/publication/345386785_Should_consent_for_data_processing_be_privileged_in_health_research_A_comparative_legal_analysis

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Consent and Retrospective Data Collection SpringerLink

(1 days ago) WebThis chapter will focus on the potential legal and practical hurdles associated with obtaining consent from the data subject for a new processing purpose. In addition, …

https://link.springer.com/chapter/10.1007/978-981-99-6540-3_7

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Specific measures for data-intensive health research without …

(Just Now) WebA total of 13 soft law instruments (see Table 2) and 26 scientific articles (see Table 3) were included, mentioning measures for processing health data for research …

https://www.nature.com/articles/s41431-023-01471-0

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When is consent appropriate? ICO

(7 days ago) WebIn short, no. Consent is one lawful basis for processing, but there are five others. Consent won’t always be the most appropriate or easiest. You must always choose the lawful …

https://ico.org.uk/for-organisations/uk-gdpr-guidance-and-resources/lawful-basis/consent/when-is-consent-appropriate/

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GDPR Compliance in the Healthcare Industry: Protecting Patient Data

(6 days ago) WebLawful bases for data processing in healthcare. Data processing in healthcare must have a lawful basis as outlined in GDPR. The following lawful bases are commonly …

https://www.gdpr-advisor.com/gdpr-compliance-in-the-healthcare-industry-protecting-patient-data/

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How should we obtain, record and manage consent? ICO

(6 days ago) WebConsent must be specific and informed. You must as a minimum include: the name of your organisation and the names of any other controllers who will rely on the consent – …

https://ico.org.uk/for-organisations/uk-gdpr-guidance-and-resources/lawful-basis/consent/how-should-we-obtain-record-and-manage-consent/

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Ethical Issues in Consent for the Reuse of Data in Health Data

(Just Now) WebData platforms represent a new paradigm for carrying out health research. In the platform model, datasets are pooled for remote access and analysis, so novel …

https://link.springer.com/article/10.1007/s11948-021-00282-0

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Consent - General Data Protection Regulation (GDPR)

(6 days ago) WebProcessing personal data is generally prohibited, unless it is expressly allowed by law, or the data subject has consented to the processing. While being one of the more well …

https://gdpr-info.eu/issues/consent/

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Key Considerations for Patient Data Access, Patient Engagement

(4 days ago) WebIn addition to providing patient data access, healthcare organizations need to consider the role of patient-generated health data and data-sharing consent. Most …

https://www.techtarget.com/patientengagement/feature/Key-Considerations-for-Patient-Data-Access-Patient-Engagement

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Specific measures for data-intensive health research without …

(4 days ago) WebIntroduction. Over the past decades, the importance of obtaining consent in medical research settings has been strongly emphasized [].However, in data-intensive …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10772063/

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Health Insurance Portability and Accountability Act of 1996 (HIPAA)

(9 days ago) WebException: A group health plan with fewer than 50 participants that is administered solely by the employer that established and maintains the plan is not a …

https://www.cdc.gov/phlp/php/resources/health-insurance-portability-and-accountability-act-of-1996-hipaa.html

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Family Educational Rights and Privacy Act (FERPA) Public Health …

(1 days ago) WebFERPA allows schools to disclose information from a student's education record, without consent, to the following parties or under the following conditions:

https://www.cdc.gov/phlp/php/resources/family-educational-rights-and-privacy-act-ferpa.html

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Maryland Signs Data Privacy Act Into Law—And Bucks Several …

(9 days ago) WebStill, data privacy experts agreed that the Maryland law took significant steps to add protections to sensitive data and limit the types of collecting and processing …

https://www.law.com/legaltechnews/2024/05/10/maryland-signs-data-privacy-act-into-law-and-bucks-several-privacy-trends/

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Cannabis Facts and Stats Cannabis and Public Health CDC

(5 days ago) WebFast facts. Cannabis is the most commonly used federally illegal drug in the United States; 52.5 million people, or about 19% of Americans, used it at least once in 2021. 1. Recent …

https://www.cdc.gov/cannabis/data-research/facts-stats/index.html

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National Electronic Health Record Systems and Consent to …

(1 days ago) WebThis study focuses on the single most important regulatory aspect of data processing, namely consent to data processing. It compares approaches to consent under the …

https://link.springer.com/chapter/10.1007/978-981-15-1350-3_6

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Maryland Creates a New Paradigm for Data Privacy

(Just Now) WebLimitation on processing of personal data to what is reasonably necessary for disclosed—or compatible—purposes, (which is defined to include consumer health …

https://www.dwt.com/blogs/privacy--security-law-blog/2024/05/maryland-online-data-privacy-act-signed

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IFF comments on WHO's Draft Principles for Human Genome Data

(9 days ago) WebThe ‘Internet Freedom Foundation’ (IFF) has shared its comments on the World Health Organization’s (WHO) ‘Draft Principles for Human Genome Data Access, Use …

https://www.medianama.com/2024/05/223-iff-shares-comments-on-the-whos-draft-principles-for-human-genome-data/

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Patient Perspectives and Preferences for Consent in the Digital …

(3 days ago) WebPatient experiences with digital health consent will also be explored to generate insights into optimizing the effectiveness of digital health consent processes, …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9960046/

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Changes in pain, mood, and functional connectivity following cryo

(1 days ago) WebIntroduction: This report describes the effects of auriculotherapy (AT) using cryogenic needles in a small cohort of chronic low back pain patients. Methods: The …

https://www.medrxiv.org/content/10.1101/2024.05.17.24301837v1

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Journal Articles Cannabis and Public Health CDC

(Just Now) WebJones J, et al. Marijuana and alcohol use among injured drivers evaluated at Level I trauma centers in Arizona 2008-2014. Liu S, et al. A latent class analysis of drug …

https://www.cdc.gov/cannabis/data-research/journal-articles/index.html

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Routine processing of personal data in respect of official

(5 days ago) WebThe data controller is the Department for Environment, Food and Rural Affairs (Defra) for personal data that you give to the Animal and Plant Health Agency (APHA). …

https://www.gov.uk/government/publications/animal-and-plant-heath-agency-privacy-notices/routine-processing-of-personal-data-in-respect-of-official-veterinarians-animal-health-paraprofessionals-and-food-competent-certification-officers

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Where is Bird Flu Spreading in the US? - Healthline

(4 days ago) WebNew data from the CDC has revealed where bird flu is likely spreading. Marco Govel/Stocksy United Photo. The Centers for Disease Control and Prevention has begun …

https://www.healthline.com/health-news/the-cdc-has-a-new-map-of-where-bird-flu-is-spreading-what-to-know

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