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Facts about rare neuroimmune disorders: The 5 W’s

WEBNeuroimmune disorders, such as acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum …

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URL: https://wearesrna.org/resources/facts-about-rare-neuroimmune-disorders-the-5-ws/

MOG Antibody Disease: Adult and Pediatric Presentations

WEBCOVID-19 vaccine • Get the latest information from the CDC. SRNA partnered with The MOG Project to host this Ask the Expert podcast on “MOG Antibody …

Category: Health Go Health

MOG Antibody Disease (MOGAD) Signs & Symptoms SRNA

WEBMOG antibody disease preferentially causes inflammation in the optic nerve, 14 but can also cause inflammation in the spinal cord, brain, and brainstem. 15 The recent …

Category: Health Go Health

MOG Antibody Disease: Diagnosis and Treatment Guidelines

WEBNovember 5, 2021. SRNA’s Krissy Dilger was joined by Drs. Eoin Flanagan and Rohini Samudralwar for an Ask the Expert podcast on “MOG Antibody Disease: Diagnosis and …

Category: Health Go Health

Avoiding a Misdiagnosis: Understanding the Differences Between …

WEBNovember 5, 2021. GG deFiebre, PhD of SRNA was joined by Drs. Geoffrey Eubank and Michael Levy for an Ask the Expert podcast on “Avoiding a Misdiagnosis: Understanding …

Category: Health Go Health

Acute Flaccid Myelitis (AFM) Long-Term Care SRNA

WEBAssessment and fitting for splints designed to passively maintain an optimal position for limbs that cannot be actively moved is an important part of the management at this …

Category: Health Go Health

NMOSD Neuromyelitis Optica Spectrum Disorder Symptoms

WEBLoss of bladder or bowel control. Intractable nausea and vomiting. Profound bladder retention. Loss of color vision. Intractable hiccups. Loss of sensation. Read detailed …

Category: Health Go Health

The Role of CDC and Public Health in AFM Surveillance Part I

WEBThe experts discuss the process of how AFM cases are diagnosed, reported to public health agencies, sent to CDC, and classified. They describe the role of each …

Category: Health Go Health

Skin Health: Prevention and Treatment of Skin Breakdown

WEBSkin is the largest organ covering the entire outside of the body. It receives one third of the body’s blood circulation. If the skin becomes injured or broken, it is generally very …

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Resource Library SRNA

WEBA Conversation about Grief and Loss with Chris Lopardi. SRNA's Resource Library contains hundreds of informational resouces on rare neuroimmune disorders, including podcasts, …

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Behavioral and Psychological Changes in Demyelinating Conditions

WEBSRNA is joined by Dr. Cynthia Wang and Dr. Lana Harder for an Ask the Expert podcast on “Behavioral and Psychological Changes in Demyelinating …

Category: Health Go Health

The Role of CDC and Public Health in AFM Surveillance Part II

WEBRebecca Whitney: [00:00:00] Welcome to the SRNA Ask the Expert podcast series, a special edition in collaboration with Centers for Disease Control and Prevention, Division …

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Peer Connect Program SRNA

WEBPeer Connect Leaders (PCL) are volunteers who have been diagnosed with a rare neuroimmune disorder. Sharing experiences with others who truly understand what it is …

Category: Health Go Health

MOG Antibody Disease (MOGAD) Long-Term Care SRNA

WEBLong-Term Care. After the acute phase, rehabilitative care to improve functional skills and prevent secondary complications of immobility involves both psychological and physical …

Category: Health Go Health

Acute Disseminated Encephalomyelitis (ADEM) Long-Term Care

WEBAssessment and fitting for splints designed to passively maintain an optimal position for limbs that cannot be actively moved is an important part of the management at this …

Category: Health Go Health

The Neuromyelitis Optica Spectrum Disorder Financial Assistance …

WEBStruggling with out-of-pocket expenses due to neuromyelitis optica spectrum disorder? The Assistance Fund (TAF) helps patients and families facing high medical …

Category: Medical Go Health

SRNA Hope Ambassador

WEBMy research is focused on clinical interventions and symptom management in neuroimmunologic disease and spasticity. I direct a neuroimmunology fellowship …

Category: Health Go Health

Study Summary: Exploring Disability Identity with Adolescents

WEB2021 ISSUE 1. The purpose of this study was to explore how adolescents conceptualize disability identity and what factors may influence the development of disability identity in …

Category: Health Go Health

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