Understandingpatientdata.org.uk

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Research and resources Understanding patient data

WEBPutting transparency into practice. Transparency is important for creating trustworthy systems for managing data but there isn't a common understanding of what it means. …

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URL: https://understandingpatientdata.org.uk/research-and-resources

What are the risks around patient data

WEBThere are huge benefits when patient data is used responsibly to save lives, improve health and care, and advance medical research. However, it is true that sharing patient data …

Category:  Medical Go Health

Why is it important to use patient data

WEBImproving health, care and NHS services. If small amounts of data from many patients are linked up and pooled, researchers and doctors can look for patterns in the data, helping …

Category:  Health Go Health

Understanding Patient Data

WEBOur animation series show how patient data is used to improve health and care, and the safeguards to protect confidentiality. They are available for anyone to reuse under a CC …

Category:  Health Go Health

Frequently Asked Questions Understanding patient data

WEBWhenever you interact with the health service, such as during a GP appointment or hospital visit, they collect data about you, your health and your lifestyle. This is recorded and …

Category:  Health Go Health

Explaining how patient data informs health information

WEB1. Small changes can make a big difference: adding short explanations about the way patient data is used to inform health information had a noticeable and influential impact …

Category:  Health Go Health

How is patient data used

WEBThe types of organisations that can use patient data include: NHS providers and commissioners: use data to monitor trends and patterns in hospital activity, to assess …

Category:  Health Go Health

How is data kept safe

WEBData ethics, governance and regulation. It is essential that patient data is kept safe and secure, to protect your confidential information. There are many ways that your privacy …

Category:  Health Go Health

What Words To Use Understanding patient data

WEBThe purpose of the What Words To Use project is to: Gain insight into members of the public’s understanding of TREs, SDEs, and other similar data spaces that are used to …

Category:  Health Go Health

Making better use of NHS data: Where we’re at with the Federated …

WEBUnderstanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.

Category:  Health Go Health

Case studies Understand Patient Data

WEBThere is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have …

Category:  Health Go Health

Insights from Black & South Asian people on patient data

WEBWhy this research? Understanding Patient Data prioritised learning more about the views of Black and South Asian people when it comes to sharing health data because of the …

Category:  Health Go Health

WHAT HAPPENS TO HEALTH DATA

WEBLarge datasets have the potential to improve many aspects of healthcare, and are the main focus of this guide. All health services need data to work efectively, and always. …

Category:  Health Go Health

A number of studies have explored how people feel about the …

WEB1. A number of studies have explored how people feel about the use of patient data, with fairly consistent findings. People are generally comfortable with anonymised data from …

Category:  Health Go Health

A number of studies have explored how people feel about the …

WEBLast updated 01.08.2019 4 Health data storage and public cloud use (2018) ComRes interviewed over 2,000 people as part of the Corsham Institute report about health data

Category:  Health Go Health

Introducing patient data Understanding patient data

WEBWhat is patient data? Whenever you interact with the health service, such as during a GP appointment or hospital visit, they collect data about you, your health and your lifestyle. …

Category:  Health Go Health

Ethics, governance and regulation Understanding patient data

WEBWhere advances in data science have the power to create valuable insights into health, illness and treatments, it may be ethically the right thing to use patient data. But there …

Category:  Health Go Health

Long Read: What does the Data Protection and Digital Information …

WEBNicola Hamilton, Head of Understanding Patient Data, gives an overview of the Data Protection and Digital Information Bill and ten key changes that are relevant to …

Category:  Health Go Health

Bringing together our work on equitable data collection with Black …

WEBBack in 2021, we launched a project which involved engaging with Black and South Asian people on equitable data collection. Over time, we put out a number of …

Category:  Health Go Health

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