Rarepatientvoice.com

Providing patients and caregivers a voice

WebWes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, …

Actived: 9 days ago

URL: https://rarepatientvoice.com/

According to New Report, Today’s Diagnostic

WebTOWSON, MD, February 17, 2022 – Rare Patient Voice LLC, a leading patient recruitment firm, and MediFind, an advanced digital health platform helping people facing complex …

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Patient Insights on Telehealth: A Case Study Rare Patient Voice

WebIt reveals fresh insights on telehealth including positives, negatives, and propensity to use during Covid-19 and beyond. The study used the data gathered after …

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What diseases do we cover

WebAt Rare Patient Voice, we have a panel of over 100k patients and caregivers in the US, Canada, the UK, Italy, Germany, France, and Spain. Those patients and …

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Cancer Research Clinical Trials Rare Patient Voice

WebWe currently have a number of clinical research studies open for patients and family caregivers. Links to the clinical trials we are working to fill immediately are listed below. If …

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Sign Up and Enjoy Patient Benefits

WebWhen you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights. By signing up, you will earn …

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Stacey Haines, Patient and Social Media Outreach Associate

WebStacey is a graduate of the Institute of Integrative Nutrition and joined the Patient Outreach team in 2021. With her personal and caring approach, she is able to build long lasting …

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Telehealth: Benefits and Disadvantages Rare Patient Voice

WebRemote patient monitoring—vital signs and measurements sent to the healthcare provider. Using technology to deliver healthcare has far-reaching benefits to …

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Road to Rare Disease Day: Tara's Story

WebRoad to Rare Disease Day: Tara’s Story. February 22, 2022 Laura Mullen. “My name is Tara Zier and I was diagnosed with a rare disease called Stiff Person …

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Healthcare Research Panel Recruitment Rare Patient Voice

WebContact us at [email protected]. Rare Patient Voice provides support for patient recruitment in market research, advancing clinical studies. Email us for inquiries …

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Study Opportunities Rare Patient Voice

WebAt Rare Patient Voice, we connect patients and caregivers with opportunities to take part in several types of research. We always get their consent before sharing any data and we …

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What are Patient Advocacy Groups

WebJanuary 28, 2021 Wes Michael. Patient advocacy groups educate and support patients and their families throughout their healthcare journey. Many of these organizations are …

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RPV Reveals List of Diseases and Conditions Most Requested for …

WebOf the 9,000 requests Rare Patient Voice received for nearly 400 different diseases and conditions, the list of 20 represents the diseases and conditions for which …

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Vision, Mission and Core Values

WebVision, Mission and Core Values. Vision. Our vision is to include the patient voice in research and ultimately improve the lives of patients everywhere. Mission. Rare Patient …

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