Rarediseasesinternational.org

Universal health coverage

RDI’s UHC Day 2022 event focused on Universal Health Coverage (UHC) for rare diseases. Expert panelists developed recommendations and next steps towards making “Health for All” a reality for the over 300 million Persons Living with a Rare Disease (PLWRD) worldwide. See more

Actived: 8 days ago

URL: https://www.rarediseasesinternational.org/universal-health-coverage/

Health Equity & ACCESS

WebHealth Equity & ACCESS. Persons Living with a Rare Disease (PLWRD) and their families must have an equal opportunity to achieve the highest possible level of physical, mental, and social well-being. Inequity for …

Category: Health Go Health

Rare Diseases International Rare Diseases International

WebThe UN adopt a new Political Declaration on “UHC expanding our ambition for health and well-being in a post-COVID world” with Rare Diseases included. Read More. EVENTS. …

Category: Health Go Health

UN Resolution on Persons Living with a Rare Disease

WebThe Resolution goes beyond health. It affirms that addressing the needs of Persons Living with a Rare Disease is essential to advancing the 2030 Agenda for Sustainable …

Category: Health Go Health

Operational Description of Rare Diseases

WebA rare disease is a medical condition with a specific pattern of clinical signs, symptoms, and findings that affects fewer than or equal to 1 in 2000 persons living in any World Health …

Category: Medical Go Health

World Health organization

WebWorld Health organization. Our community’s engages with the World Health Organization (WHO) to raise awareness of rare diseases, encourage the development of international …

Category: Health Go Health

The right to health – making rare diseases a global health priority

Web#rdiGeneva . 10 February 2017, Geneva – A-first-of-its-kind event took place in Geneva which brought together international experts in the fields of public health, human rights, …

Category: Health Go Health

RDI calls on UN member states to make Universal Health …

Web21 September 2023, New York – Today, at a high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress towards achieving …

Category: Health Go Health

New scientific paper confirms 300 million people living with a rare

WebThis paper is co-authored by Orphanet (coordinated by INSERM, the French National Institute of Health and Medical Research), EURORDIS – Rare Diseases …

Category: Medical Go Health

Agreement with the WHO

WebIn December 2019, Rare Diseases International (RDI) signed a Memorandum of Understanding with the World Health Organization (WHO). The collaboration aims to …

Category: Health Go Health

#UHC4Rare toolkit

WebThe Universal Health Coverage for Rare Diseases (#UHC4RareDiseases) Campaign aims to enable patient organisations and the public to advocate for Universal Health Coverage …

Category: Health Go Health

Global Network for rare diseases

WebPOLICY FRAMEWORK. The vision for the GNRD is anchored in the UN Political Declaration on Universal Health Coverage (2019) which commits the UN and Member States to …

Category: Health Go Health

UHC day 2022 – UNIVERSAL HEALTH COVERAGE FOR RARE …

WebRDI’s UHC Day 2022 event focused on Universal Health Coverage (UHC) for rare diseases. Panelists developed recommendations and next steps towards making “Health for All” a …

Category: Health Go Health

Rare Diseases: A GLobal Priority for Equity

WebMeeting Report. Meeting Report – “Fourth High-Level meeting of the NGO Committee for Rare Diseases Celebrating the adoption of the UN Resolution on Addressing the …

Category: Health Go Health

Inclusion & Human Rights

WebKey Resources . RDI UHC Day Statement on Health Equity, 13 December 2021; Policy event ‘The Right to Health: The Rare Disease Perspective’ at Campus …

Category: Health Go Health

Rare diseases feature for first time at World Health Assembly

WebThe World Health Assembly. The World Health Assembly takes place annually in Geneva, Switzerland. It is the forum through which the World Health …

Category: Health Go Health

Rare Diseases International and its partners call on United …

WebMember States to make Universal Health Coverage a reality for People Living with Rare Diseases 21 September 2023, New York – Today, at a high-level …

Category: Health Go Health

World Health Assembly

WebPaloma Tejada, RDI Director, delivered an oral Statement on Rare Diseases at the 71st World Health Assembly (23 May, 2018), submitted with Thalassaemia International …

Category: Health Go Health

United Nations human rights body stresses the need to address …

WebThe United Nations Office of the High Commissioner for Human Rights (OHCHR) has made reference to persons living with a rare disease within its recently …

Category: Health Go Health

A General Assembly

Webof primary health care, in order to provide universal access to a wide range of health-care services that are safe, of quality, accessible, available and affordable, timely, and …

Category: Health Go Health

75TH WORLD HEALTH ASSEMBLY

WebThe RDI event at the margins of the 75th WHA explored how national healthcare systems can be strengthened to better support Persons Living with a Rare Disease (PLWRD) and …

Category: Health Go Health

Leveraging Universal Health Coverage to Advance Rare …

WebEmbrace Aim of universal health coverage for all by 2030 Halt rising out-of-pocket health expenditures by providing greater financial risk protection Fit UHC to …

Category: Health Go Health

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