Raredisease.powellcenter.med.ufl.edu

Powell Center for Rare Disease Research and Therapy » …

WEBCenter for Pediatric Neuromuscular and Rare Diseases. The pediatric neuromuscular program at UF Health Shands Hospital offers one-stop access to comprehensive care, including leading-edge diagnostic …

Actived: 5 days ago

URL: https://raredisease.powellcenter.med.ufl.edu/

About Us » Powell Center for Rare Disease Research …

WEBOur Mission The University of Florida Powell Center for Rare Disease Research and Therapy is dedicated to improving the lives of those suffering from rare diseases by providing world-class medicine and …

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Clinical Team » Powell Center for Rare Disease Research and …

WEBA collaborative approach to patient-centered clinical care Management of neuromuscular disorders requires multidisciplinary expertise. The pediatric neuromuscular program at …

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Research » Powell Center for Rare Disease Research …

WEBClinical Trials Clinical trials play a key role in the discovery and development of new treatments for neuromuscular diseases. The University of Florida is a major site for rare disease research working on improved …

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COVID-19 » Powell Center for Rare Disease Research …

WEBThe World Health Organization (WHO) has declared COVID-19 a pandemic. What does that mean for me? An Epidemic is a sudden increase in the number of cases of a disease—more than what’s typically …

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Renata Shih, M.D.

WEBRenata L. Shih, MD, is board-certified in general pediatrics and pediatric cardiology. Dr. Shih received her medical degree from Faculdade Ciencias Medicas Santa Casa de Sao …

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Saleem Islam, MD, MPH

WEBSaleem Islam, M.D., M.P.H., is a professor of surgery and pediatrics in the University of Florida’s College of Medicine. He lead the division of Pediatric Surgery from 2015-2022 …

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Referrals » Powell Center for Rare Disease Research …

WEBA referral for an evaluation by the Care Center Team can be made by a physician or health professional who believe your child, who has neuromuscular disease, would benefit from interdisciplinary care. If your …

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Clinical Research Center

WEBThe primary mission of the Gene Therapy Center at the University of Florida is to merge molecular genetics research and health care delivery by developing new therapeutic strategies for the treatment of human …

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Emflaza (Deflazacort) » Powell Center for Rare Disease Research …

WEBHow is EMFLAZA ® given to patients?. EMFLAZA ® is available both as a tablet and as an oral suspension. Both can be taken with or without food. EMFLAZA ® tablets can be …

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Billing & Insurance » Powell Center for Rare Disease Research and

WEBUF Health Shands Hospital and the University of Florida are approved Medicare providers. All services billed to Medicare follow federal guidelines and procedures. Medicare has a …

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Rare Disease Podcasts » Powell Center for Rare Disease Research …

WEBThis podcast features people with chronic health conditions as they share their positive coping tools and practitioners of mind-body and/or alternative health who have helped …

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Medicaid Transport » Powell Center for Rare Disease Research and

WEBIf your child is enrolled in a health plan, call your child’s plan to find out the name and telephone number for your transportation provider if you need a ride to the clinic. If your …

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Care Center Space » Powell Center for Rare Disease Research and …

WEBUF Health Pediatric Specialties – Medical Plaza offers nationally-recognized specialty care that’s easily accessible for your family. U.S. News and World Report ranked three of UF …

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Angela M Miney » Powell Center for Rare Disease Research and …

WEBAngela Miney is the UF Health Pediatric Pulmonary Center (PPC) Family Partner, funded by the Maternal and Child Health Bureau. She comes to this role as the parent of a …

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Patient Organizations and Foundations

WEBThese groups—many founded by parents within the rare disease community—help connect patients and families to education, research, and support services. Here are just a few of …

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Frieda P Ansoanuur » Powell Center for Rare Disease Research and

WEBFrieda Ansoanuur, MD, earned her medical degree from the Morehouse School of Medicine in Atlanta. She completed her residency training in physical medicine and rehabilitation …

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Accepted Insurances » Powell Center for Rare Disease Research …

WEBUF Health Shands Hospital and University of Florida Health Physicians This list is not a guarantee of network participation with any payer. Benefit plan, referral and …

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Silvia Delgado » Powell Center for Rare Disease Research and …

WEBSilvia Delgado, MD, is the Director of the Pediatric Cystic Fibrosis Center at the University of Florida as well as the Newborn Screen Cystic Fibrosis Center Director. She is a …

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Billing and Insurance FAQ

WEBFor specific information, please contact UF Health Customer Service Department at (352) 265-7906 or (888) 766-8154 (Jacksonville patients, call (904) 244-4015), or view …

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Daniel R Stewart,

WEBDaniel Stewart is a Nationally Registered and State licensed Dietitian. He graduated with his undergraduate degree in Food Science and Human Nutrition in 2000 from the University …

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