Medconfidential.org

Your hospital data is still being sold – and here’s why it …

WEBEvery flow of health data should be consensual, safe, and transparent. The Wellcome Trust found that up to 39% of people would have concerns about the use of their hospital data (page 92). Those concerns are well founded, and the safeguards currently insufficient. …

Actived: 7 days ago

URL: https://medconfidential.org/2017/your-hospital-data-is-still-being-sold-and-heres-why-it-matters/

How to opt out medConfidential

WEB1) Protect your GP data: fill in and give this ‘Type 1’ form to your GP practice [PDF] [or MS Word version] – this one page form allows you to include details for your children and dependants as well. This is the most important step; the Type 1 GP Data opt-out is the …

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Major health data breaches and scandals medConfidential

WEBFor an overview and account of significant cases and high-profile scandals involving health data in the years preceding 2013, we recommend the presentation [245KB PowerPoint file] by Ross Anderson, Professor of Security Engineering at the University of Cambridge …

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medConfidential Keep Our Confidence

WEBmedConfidential defends the confidentiality you desire for your medical records. (We have detail on the Palantir announcement and how to use your opt outs) Every use of data should be consensual, safe, and transparent. In matters of health and care, your relationship …

Category:  Medical Go Health

Why does medical confidentiality matter

WEBmedConfidential believes there need be no conflict between good research, good ethics and good medical care. We campaign for confidentiality and consent in health and social care – seeking to ensure that every flow of data into, across and out of the NHS and care …

Category:  Medical Go Health

codeList: information extracted from your GP record

WEBThis page reflects the best available information as of 12th May 2021. The Government intends to extract dated details (known as “events” or “coded concepts”) from the GP record of every man, woman and child in England – each associated with their NHS number, …

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Shared Care Records medConfidential

WEB3) Ensure Shared Care Records can be seen as trustworthy, on an ongoing basis. From the point they are introduced, a record of every access of a ShCR must be made available to the patient or service user via their new NHS Login, cf. Data Usage Reports. If a …

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Bringing people together to develop new ways to detect, …

WEB2. What joining involves What will I be asked to do if I join Our Future Health? If you join Our Future Health, we will ask you to: • Read and sign a consent form. • Give permission for us to access health-related records about you.

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Our Future Health is a company medConfidential

WEBAs Our Future Health promotes itself ever more loudly and ever less clearly, this is medConfidential’s current view on the project, the commercial company that lurks within a charity, and promotes itself using the NHS logo. While our view may change as new …

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Full GP data copy to be taken from Summer 2021 medConfidential

WEBFrom some undetermined date, and every day thereafter, the Government has Directed NHS Digital to take from your and your family’s GP records: “data about diagnoses, symptoms, observations, test results, medications, allergies, immunisations, referrals, …

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What actually happened with care.data

WEBThe story of what happened up until 2013 is here, as is what happened after 2016.. This brief summary covers what happened with the care.data programme, from its inception in 2013 to its cancellation in 2016.. The Roadmap. The goal was to take patients’ GP data, …

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Code of practice on confidential information

WEBThe Code of Practice applies to organisations which provide information functions, that is they collect, analyse, publish or otherwise disseminate confidential information concerning or connected with health services or adult social care delivered in England. Figure 1 – …

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The opt out process for children medConfidential

WEBIn order to register dissent for your children’s medical records to be used for purposes beyond their direct care (and why):. 1) Protect your GP data: fill in and give this ‘Type 1’ form to your GP practice [PDF] [or MS Word version] – this form allows you to include …

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How to find out when your GP records have been accessed

WEBNone of the below will tell you about uses beyond your direct care, e.g. research or commercial sale or “re-use”. This is the beginning of accountability, not the end.

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Appendix 1: Our Future Health pre-invitation communications …

WEBAppendix 1: Our Future Health pre-invitation communications plan This communications plan is designed to: • Align with the Confidentiality Advisory roup’s purpose of protecting and promoting the

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The HSCIC’s strategy 2015 – 2020 Information and technology …

WEBIn order for the HSCIC to be successful in delivering our strategy, we must ensure that our workforce is fully engaged in the strategy and has a clear understanding of its implications for our health and social care partners. Our staff have a valued role to play to support …

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Our Future Health Protocol

WEBOur Future Health Protocol version 4.0 8 2. Scientific rationale 2.1. Prospective study design Prospective observational cohort studies are valuable because these real-world studies facilitate

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The Role of the Health and Social Care Information Centre

WEBThe Health and Social Care Information Centre is a ground-breaking data, information and technology resource for the health and care system and plays a fundamental role in driving better care, better services and better outcomes for patients. Purpose.

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Our Future Health responses to ques ons dated 13/4/2023

WEB3. Please can you provide further information on how you specifically consider, for each location, which demographics you will focus to recruit and how you increase under-

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