Fshdsociety.org

Facioscapulohumeral Muscular Dystrophy Info

WebEnsuring no one faces Facioscpulohumeral Muscular Dystrophy (FSHD) alone. Our goal for all impacted by FSHD is two-fold: 1) Speed the delivery of effective …

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URL: https://www.fshdsociety.org/

FSHD Health & Medical Issues for FSHD Patients FSHD Society

Web2010 FSH Society International Patient and Researcher Network Meeting, July 30–August 1, 2010. Presentation slides for talk titled: Breathing and Respiratory Health for People with …

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Exercise and Fitness

WebThere is good evidence that exercise can help slow and even reverse the loss of function caused by FSHD. Exercise is also essential for your overall fitness and …

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Health and Medicine

WebChronic Pain in Persons With Facioscapulohumeral Dystrophy and Other Neuromuscular Disorders, by R. Ted Abresch, Department of Physical Medicine and …

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Wellness FSHD Society

WebWellness. For many people living with FSHD, the anxiety and stress of coping with disability, pain, fatigue, and interactions with others can be just as debilitating …

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For Patients & Families FSHD Society

WebThe genetic “package” that causes FSHD is found only in people. We owe an enormous debt to the patients who give DNA samples. Who submit to long interviews …

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Treatments for FSHD: A broader view FSHD Society

WebThere are many treatments already for FSHD. Indeed, most of the drugs being developed are not a cure but a treatment. A treatment leads to an improvement in …

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FAQs about genetic testing for FSHD FSHD Society

WebYes, genetic testing is needed to definitely diagnosis FSHD and determine whether it is Type 1 or Type 2. Once one person in a family has had genetic testing to …

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A Guide for Patients & Physical Therapists

Webpurpose of this guide is to assist physical therapists and patients to develop an. individualized plan of care based on the best research evidence, clinician expertise and …

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miRecule, Inc., is developing a novel treatment for FSHD

WebIn their offices in Maryland, just northwest of Washington, DC, miRecule Inc. and its founder Anthony Saleh, PhD, are hard at work developing a novel treatment for …

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Bone Health in FSHD--What do I need to know

WebBone health is a topic that until recently has not been discussed in the context of FSHD, but we are beginning to realize that it is a significant medical concern in …

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Radio show: Meet Heather Green, forensic psychologist

WebPosted on: Aug 15, 2019. Join radio host Tim Hollenback via Facebook Live on Thursday, August 29, at 9:00 PM EST for a conversation with the fascinating Heather Green. You …

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A Publication of the Facioscapulohumeral Muscular Dystrophy …

Web2 • FSH Watch • Winter 2015 Board of directors Daniel P. Perez, President & CEO

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Clinical Trials FAQ FSHD Society

WebA clinical trial is a type of clinical research study involving human volunteers.Usually, the term refers to a research study that tests a medicine, medical device, or other type of …

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Statins (cholesterol-lowering drugs) and muscular dystrophy

WebThis serious and rare complication is most likely to happen in people taking very high doses of statins, particularly in combination with other drugs. very rarely, …

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Medicare coverage for ongoing maintenance physical therapy

WebActually, Medicare can cover ongoing PT if you therapist feels that such therapy is needed to maintain your current function and slow your decline. If that is the …

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Fulcrum announces Phase 3 trial of losmapimod FSHD Society

WebCAMBRIDGE, Mass., March 03, 2022 (GLOBE NEWSWIRE) — Fulcrum Therapeutics, Inc. (Nasdaq: FULC), a clinical-stage biopharmaceutical company focused on improving the …

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Fundraising Webinar: Organizing a Benefit Concert FSHD Society

WebFrom our series of “Fundraising Masterclasses,” this webinar features Beth Johnston and Judith Seslowe who have co-chaired the our New York City benefit …

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GUIDELINES FOR PHYSICAL THERAPISTS TREATING CLIENTS …

WebMedicare Maintenance Therapy for Physical Therapists Treating Clients with Neuromuscular Disorders (continued) 2 Maintenance Therapy: Improvement is not expected and should …

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