Curesickle.org

Cure Sickle Cell Initiative Advancing research in sickle cell disease

WEBIt’s time to rewrite the story of sickle cell. The Cure Sickle Cell Initiative is building a community of patients, advocates, researchers, and scientists to accelerate promising …

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URL: https://curesickle.org/

Cure Sickle Cell Initiative Advancing research in sickle cell disease

WEBThe Cure Sickle Cell Initiative is a collaborative, patient-focused research eﬀort designed to accelerate promising genetic therapies to cure sickle cell disease. The Initiative …

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Clinical Trials Cure Sickle Cell

WEBClinical trials are medical studies that help find safe and effective ways to prevent, detect, or treat diseases. The Cure Sickle Cell Initiative (CureSCi) is working with researchers …

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Cure Sickle Cell Initiative Cure Sickle Cell

WEBWe recognize there may not be agreement between providers, researchers, and the patient community on how exactly to define a cure. But, in our efforts to accelerate promising …

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Cure Sickle Cell The Cure Sickle Cell Initiative was created by the

WEBOur Mission. The Cure Sickle Cell Initiative was created by the National Heart, Lung, and Blood Institute to: Use emerging safe and promising gene therapies to improve the lives …

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GeneTherapies Cure Sickle Cell

WEBIn late 2023, the U.S. Food and Drug Administration approved Casgevy and Lyfgenia, the first cell-based gene therapies for the treatment of sickle cell disease. Patients who have …

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Leadership Cure Sickle Cell

WEBEXECUTIVE DIRECTOR, CURE SICKLE CELL INITIATIVE. Edward J. Benz, Jr., M.D., President and CEO Emeritus at Dana-Farber Cancer Institute, began his faculty career …

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Cure Sickle Cell Initiative Cure Sickle Cell

WEBFormal Trial Name. Transplantation of CRISPR-CAS9 Corrected Hematopoietic Stem Cells in Patients with Severe Sickle Cell Disease. Trial Funding The University of California …

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HOW DO GENETIC THERAPIES WORK

WEBAbout genetic therapy conditioning What is conditioning? Conditioning is the process used to get a patient ready for genetic therapies. This is done by using a chemotherapy drug.

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Lifetime medical costs attributable to sickle cell disease …

WEBAmerican Society of Hematology 2021 L Street NW, Suite 900, Washington, DC 20036 Phone: 202-776-0544 | Fax 202-776-0545 [email protected]

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Cure Sickle Cell Initiative Cure Sickle Cell

WEBSelect the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu. Following a long …

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Medical and Non-medical Costs of Sickle Cell Disease and …

WEBReview of US-Based Medical and Non-medical Costs of SCD electronic supplementary material for details on terms specifically related to the individual searches (Appen-

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The Use of Cost-Effectiveness Analysis in Sickle Cell Disease: A

WEBAbstract. Novel interventions for sickle cell disease (SCD) bring hope to patients, yet concern about the associated economic costs exists. Cost-efectiveness analysis (CEA) …

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Development of a conceptual model for evaluating new non …

WEBtransitions between health states predicted by patient demographic characteristics and dis-ease history. Conclusion Developing the model structure through an explicit process of …

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Coping Strategies Questionnaire – Revised for SCD

WEBCoping Strategies Questionnaire – Revised for SCD Anie, K.A., Steptoe, A. and Bevan, D.H. (2002), Sickle cell disease: Pain, coping and quality of life

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Pediatric NIH Stroke Scale (PedNIHSS)

WEBPediatric NIH Stroke Scale (PedNIHSS) Item# and Instructions. Scale Definition and Scoring Guide. 1a. Level of Consciousness: the investigator must choose a response, …

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CDE Notice of Copyright Patient-Reported Outcomes …

WEBGroup.The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: …

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