Sharing Health Data For Research

Listing Websites about Sharing Health Data For Research

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Sharing Is Caring—Data Sharing Initiatives in Healthcare - PMC

(3 days ago) WEBAnother development in data sharing is the Personalized Consent Flow : a new consent model that allows people to control their personally collected health data and determine to what extent they want to share these for research purposes. Three main …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7246891/

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A guide to sharing open healthcare data under the General Data

(Just Now) WEBSharing healthcare data is increasingly essential for developing data-driven improvements in patient care at the Intensive Care Unit (ICU). Care and Public Health …

https://www.nature.com/articles/s41597-023-02256-2

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Sharing and reuse of health-related data for research purposes: …

(2 days ago) WEBThe purpose of this document is to clarify the policy and practice on the reuse and onward sharing for research purposes of health data collected under the auspices …

https://www.who.int/publications-detail-redirect/9789240044968

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FAIR, ethical, and coordinated data sharing for COVID-19 …

(3 days ago) WEBData sharing is central to the rapid translation of research into advances in clinical medicine and public health practice. In the context of COVID-19, there has been a rush …

https://www.thelancet.com/journals/landig/article/PIIS2589-7500(23)00129-2/fulltext

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Unlocking the potential of health data to help research …

(Just Now) WEBUnlocking the potential of health data to help research and treatments. Medical records can be tricky to access because of confidentiality and variability, but data-sharing efforts are helping to

https://www.nature.com/articles/d41586-022-01205-0

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Remove obstacles to sharing health data with researchers - Nature

(Just Now) WEBInternational sharing of pseudonymized personal data among researchers is key to the advancement of health research and is an essential prerequisite for studies …

https://www.nature.com/articles/s41591-021-01460-0

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Sharing Health Data for Good - Center for Open Data Enterprise …

(Just Now) WEBSharing and Utilizing Health Data for the Public Good. Health and medical progress depends on the ability to share and use data on a wide range of issues, ranging from …

https://healthdatasharing.org/

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Data Sharing and Reuse of Health Data for Research

(1 days ago) WEBAbstract. Facilitating data sharing and the reuse of electronic health data for research is an important foundation for reengineering and streamlining research …

https://link.springer.com/chapter/10.1007/978-3-031-27173-1_9

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Developing Data Sharing Models for Health Research with Real

(Just Now) WEBCritical to the success of data sharing is to design secured data sharing platforms around patient preferences and expectations. The objective of this review was …

https://link.springer.com/article/10.1007/s10916-022-01875-3

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Principles for Health Information Collection, Sharing, and Use: A

(Just Now) WEBThis “business associate agreement” exception has recently been used broadly. 42 HIPAA permits the use of identifiable data for operations and quality …

https://www.ahajournals.org/doi/10.1161/CIR.0000000000001173

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What ethical approaches are used by scientists when sharing …

(4 days ago) WEBHealth data-driven activities have become central in diverse fields (research, AI development, wearables, etc.), and new ethical challenges have arisen …

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-022-00779-8

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Sharing Health Data FINAL - National Academy of Medicine

(9 days ago) WEBIn the progenitor publication, Health Data Sharing to Support Better Health Outcomes: Building a Foundation of Stakeholder Trust, barriers cited by researchers and research …

https://nam.edu/wp-content/uploads/2022/01/Sharing-Health-Data-prepub-FINAL.pdf

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Sharing Linked Data for Health Research - Cambridge University …

(9 days ago) WEB‘This is a much-needed contribution to the international discussion of how to responsibly use linked data in health research. By covering theory and practice, ethics and law, …

https://www.cambridge.org/core/books/sharing-linked-data-for-health-research/7638DA9CD3F640EADD3655BCA8728214

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International Sharing of Personal Health Data for Research

(1 days ago) WEB1 Introduction: personal data and health — 11 1.1 Sharing matters: research data as a global public good — 11 1.2 Lessons from COVID-19 — 14 1.3 Protecting patients …

https://easac.eu/fileadmin/PDF_s/reports_statements/Health_Data/International_Health_Data_Transfer_2021_web.pdf

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Study finds the risks of sharing health care data are low

(3 days ago) WEBMany other research groups have also used the data, and others have created similar databases in countries around the world. More widespread sharing of …

https://news.mit.edu/2022/patient-data-risks-low-1006

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Health data sharing attitudes towards primary and secondary use …

(7 days ago) WEBTo explore California consumers' views of data sharing for healthcare and research together. Respondents were more likely to agree to share deidentified information for …

https://www.sciencedirect.com/science/article/pii/S2589537024001305

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EU Health Data Space: more efficient treatments and life-saving …

(8 days ago) WEBIt will be possible to download the health record free of charge. Data-sharing for the common good with safeguards. Additionally, the Health Data Space …

https://www.europarl.europa.eu/news/en/press-room/20240419IPR20573/eu-health-data-space-more-efficient-treatments-and-life-saving-research

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Research ethics and artificial intelligence for global health

(4 days ago) WEBThe ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue for attention in policy, research, and practice …

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01044-w

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Data science event showcases new approaches to environmental …

(8 days ago) WEBResearchers and big data specialists from across the country, including NIEHS grantees, gathered at North Carolina State University (NC State) April 5 for the Data Science and …

https://factor.niehs.nih.gov/2024/5/feature/3-data-science

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The Health Foundation: technologies clinicians say can save the …

(Just Now) WEBOf concern was the ability to access notes and test results from other providers, underlining the challenge the NHS is facing around interoperability and data …

https://www.digitalhealth.net/2024/04/the-health-foundation-technologies-clinicians-say-can-save-the-nhs-time/

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Research: More People Use Mental Health Benefits When They …

(5 days ago) WEBNovartis has trained more than 1,000 employees as Mental Health First Aiders to offer peer-to-peer support for their colleagues. While employees were eager …

https://hbr.org/2024/04/research-more-people-use-mental-health-benefits-when-they-hear-that-colleagues-use-them-too

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A Scholarly Dialog on Recent Trends in National Institutes of …

(7 days ago) WEBBackground: The National Institutes of Health (NIH) is the major funding agency for biomedical research in the United States. To initiate a scholarly dialog about …

https://www.liebertpub.com/doi/full/10.1089/thy.2024.0084

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Purdue to open Accessible Precision Audiology Research Center in

(1 days ago) WEBThe new facility at 16 Tech Innovation District will address hearing health needs, with a focus on underserved groups. INDIANAPOLIS — Leveraging Purdue’s …

https://www.purdue.edu/newsroom/releases/2024/Q2/purdue-to-open-accessible-precision-audiology-research-center-in-indianapolis.html

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Military Health System Research Branch Health.mil

(1 days ago) WEBResearch & Engineering Military Health System Research supports health system research about the Military Health System, one of America’s largest and most complex …

https://health.mil/Military-Health-Topics/Research-and-Innovation/DHA-Research-and-Engineering-Directorate/Research-Support-Division/Military-Health-System-Research-Branch

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UT institutions collectively surpass $4.3 billion in research for

(4 days ago) WEBUT’s $4.3 billion research enterprise is one of the nation’s most innovative, ranking No. 1 in Texas and No. 2 in the U.S. for federal research expenditures. With an …

https://www.utsystem.edu/news/2024/04/30/ut-institutions-collectively-surpass-43-billion-research-fiscal-year-2023

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The public’s comfort with sharing health data with third-party

(Just Now) WEBPrevious research on patient willingness or comfort with sharing healthcare data indicate patient reservations about the use of healthcare data outside …

https://www.nature.com/articles/s41599-020-00641-5

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Physical Fitness Linked to Better Mental Health in Young People

(1 days ago) WEBThe new study, conducted by researchers in Taiwan, compared data from two large data sets: the Taiwan National Student Fitness Tests, which measures student …

https://www.nytimes.com/2024/04/29/health/adolescents-exercise-mental-health.html

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An FDA approved device offers a new treatment for ringing in the …

(3 days ago) WEBMore than 25 million adults in the U.S. have tinnitus, a condition that causes ringing or buzzing in the ears. An FDA approved device that stimulates the tongue, …

https://www.npr.org/sections/health-shots/2024/04/15/1244501055/tinnitus-hearing-loss-ringing-ear-noise

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This Chinese virologist shared crucial Covid-19 data. Then his …

(9 days ago) WEBZhang became the first scientist to share Covid-19’s genomic sequence on January 11, 2020 as the World Health Organization waited for China to provide the data …

https://www.cnn.com/2024/04/30/china/zhang-yongzhen-china-scientist-protest-intl-hnk-scn/index.html

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New performance evaluation process begins May 1

(7 days ago) WEBMain Content New performance evaluation process begins May 1. Published on Monday, April 29, 2024. Last month, I mentioned the upcoming faculty and staff …

https://www.umc.edu/news/Miscellaneous/2024/04/29/HR.html

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A Peek Inside the Brains of ‘Super-Agers’ - The New York Times

(7 days ago) WEBThe research was conducted on 119 octogenarians from Spain: 64 super-agers and 55 older adults with normal memory abilities for their age. The participants …

https://www.nytimes.com/2024/04/29/well/mind/super-agers-study.html

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USDA Actions to Protect Livestock Health From Highly Pathogenic …

(9 days ago) WEBWASHINGTON, April 24, 2024 – To further protect the U.S. livestock industry from the threat posed by highly pathogenic H5N1 avian influenza, USDA is sharing a number of …

https://www.usda.gov/media/press-releases/2024/04/24/usda-actions-protect-livestock-health-highly-pathogenic-h5n1-avian

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Understanding Disaster Response: NSF CAREER Award Supports …

(5 days ago) WEBBy studying how communities share risks and resources, we can develop more systematic approaches to disaster response.” The interdisciplinary project …

https://www.ou.edu/news/articles/2024/april/understanding-disaster-response-nsf-career-award-supports-engineer-research-on-info-sharing

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