Pedri Health Data Research

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Home copy - PEDRI

(5 days ago) WebTo address this challenge the Public Engagement in Data Research Initiative (PEDRI) is a new sector-wide partnership bringing together a range of organisations who work with …

https://www.pedri.org.uk/

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PEDRI publishes report into public engagement in data research

(1 days ago) WebIn January, PEDRI (Public Engagement in Data Research Initiative) conducted a survey to find out what resources are needed to help public engagement …

https://www.researchdata.scot/news-and-insights/pedri-publishes-report-into-public-engagement-in-data-research/

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PEDRI: Public Involvement and Engagement Best Practice …

(4 days ago) Webengagement with data research, to bring the views of the public to policymakers and data holders in a more meaningful way. A key aim of the ‘Public Engagement in Data …

https://www.adruk.org/fileadmin/uploads/adruk/Documents/PE_reports_and_documents/PEDRI-Best-Practice-Standards.pdf

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Public Engagement in Data Research Initiative launches pilot …

(1 days ago) WebProfessor Andrew Morris, Director of Health Data Research UK (HDR UK), says: “We are very excited HDR UK and its PEDRI partners are launching its pilot …

https://www.hdruk.ac.uk/news/public-engagement-in-data-research-initiative-launches-pilot-health-data-campaign/

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PEDRI: Public Involvement and Engagement Best Practice …

(4 days ago) WebWe note that PEDRI is a sector-wide partnership bringing together organisations who work with data data in healthcare and health research. We provide learning resources for …

https://usemydata.org/resources/use%20MY%20data_PEDRI%20Standards%20-%20Response.pdf

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DARE UK joins new Public Engagement in Data …

(2 days ago) WebAs such, we are pleased to be joining this shared effort to drive forward these improvements as we announce our membership in the Public Engagement in Data Research Initiative (PEDRI). This new …

https://dareuk.org.uk/dare-uk-joins-new-public-engagement-in-data-research-initiative-pedri/

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Public Engagement in Data Research Initiative launches …

(4 days ago) WebWe are delighted to announce the launch of Your Data in Action, the first pilot campaign from the Public Engagement in Data Research Initiative (PEDRI).. Informed by focus groups and insights …

https://dareuk.org.uk/public-engagement-in-data-research-initiative-launches-pilot-health-data-campaign/

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PEDRI public consultation: Draft public involvement and - DARE …

(Just Now) WebPublic Engagement in Data Research Initiative (PEDRI) aims to establish and drive forward best practices for Public Involvement and Engagement (PIE) in data …

https://dareuk.org.uk/pedri-public-consultation-draft-public-involvement-and-engagement-best-practice-standards-for-the-use-of-data-for-research-and-statistics/

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Resource Survey for Public Involvement and Engagement …

(3 days ago) WebThe Public Engagement in Data Research Initiative (PEDRI) has completed a resource survey about public involvement and engagement in data research and and …

https://www.hdruk.ac.uk/wp-content/uploads/2023/04/Resource-Survey-Report-Final.pdf

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PEDRI - First year anniversary event - HDR UK

(6 days ago) WebTo address this challenge, HDR UK joined the Public Engagement in Data Research Initiative (PEDRI) a year ago to ensure meaningful public involvement and …

https://www.hdruk.ac.uk/events/pedri-first-year-anniversary-event/

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National drive to engage public with data research

(9 days ago) WebThe Public Engagement in Data Research Initiative (PEDRI) is a new partnership that aims to ensure the public are involved in decisions around how their …

https://www.researchdata.scot/news-and-insights/national-drive-to-engage-public-with-data-research/

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Round up from the inaugural PEDRI-Alliance Working Group …

(6 days ago) WebAlliance/PEDRI (Public Engagement in Data Research Initiative) meeting and. details of two funding opportunities from Research Data Scotland and the BHF Data Science Centre. …

https://ukhealthdata.org/wp-content/uploads/2024/01/Alliance-community-bulletin-January-2024.pdf

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Health Data Research UK (HDR UK) on LinkedIn: #ppie #pedri #

(8 days ago) Web📢 Researchers and #PPIE professionals – share your thoughts on the #PEDRI Public Involvement and Engagement Best Practice Draft Standards for the use of data for …

https://www.linkedin.com/posts/hdruk_ppie-pedri-publicengagement-activity-7082746549142728704-wpI6

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Pilot campaign will engage new families with the importance of …

(8 days ago) Web10 May 2023. The Public Engagement in Data Research Initiative (PEDRI) has launched a pilot campaign to raise awareness of the public benefits of data research. ‘Your Data in …

https://www.adruk.org/news-publications/news-blogs/pilot-campaign-will-engage-new-families-with-the-importance-of-data-research/

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PEDRI rebranding and website published by Health Data Resea.

(5 days ago) WebDescription. Summary Conduct a rebrand of PEDRI programme and create new brand guidelines, co-produced with the public and create and launch a new website for PEDRI •Co-produce a new brand and website with members of the public •Ensure the new brand is accessible and the new website meets WCAG 2.2 Level AA •Provide brand …

https://www.stotles.com/explore/notices/96b8d114-8722-423d-ae1c-a1e10672e0f4/pedri-rebranding-and-website

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Patient and Public Engagement and Communications Manager …

(7 days ago) WebPurpose of the post. The post holder will have key responsibility for delivery of the Public Engagement Strategies for Health Data Research UK (HDR UK) and for …

https://www.jobs.ac.uk/job/DFX279/patient-and-public-engagement-and-communications-manager-hdr-uk-and-pedri

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Our Research HDR UK

(1 days ago) WebAdvancing Health Research. Our research will use health data in all its forms – including NHS patient data, genomics, biomedicine and wearable data – to understand predispositions to disease, develop targeted treatments and deliver new discoveries from real-world data to improve patient care. Our national health data scientific programmes

https://www.hdruk.org/research/

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Policy Experts Call for Easier Access to Healthcare Data for …

(5 days ago) Web<p>Dr. Jeffrey Brenner, a leader in coordinating healthcare initiatives in Camden, said legislation is needed to make data more easily accessible to researchers, …

https://njtechweekly.com/policy-experts-call-for-easier-access-to-healthcare-data-for-research/

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EU Health Data Space: more efficient treatments and life-saving …

(8 days ago) WebOn Wednesday, MEPs voted with 445 in favour and 142 against (39 abstentions) to approve the inter-institutional agreement on establishing a European …

https://www.europarl.europa.eu/news/en/press-room/20240419IPR20573/eu-health-data-space-more-efficient-treatments-and-life-saving-research

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Introducing the Public Engagement in Data Research Initiative: …

(8 days ago) WebCassie Smith, Head of Legal, Trust & Ethics at Health Data Research UK (co-founding organisation of PEDRI) said: “To enable data-driven research that …

https://www.adruk.org/news-publications/news-blogs/introducing-the-public-engagement-in-data-research-initiative-putting-the-public-at-the-centre-of-data-research-and-statistics/

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Research ethics and artificial intelligence for global health

(4 days ago) WebThe ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue for attention in policy, research, and practice …

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01044-w

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Center for Health Statistics and Informatics

(6 days ago) WebNJ State Health Assessment Data (NJSHAD) The NJ State Health Assessment Data (NJSHAD) System, maintained by CHS, provides access to vital statistics data, public …

https://nj.gov/health/chs/

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Welcome Big Data Analytics Laboratory - New Jersey Institute of

(8 days ago) WebWelcome. The Big Data Analytics Lab (BDaL), is an interdisciplinary research laboratory, that focuses on large-scale data analytics problems that arise in different application …

https://centers.njit.edu/bdal/node/62/

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Physical Fitness Linked to Better Mental Health in Young People

(1 days ago) WebThe surgeon general, Dr. Vivek H. Murthy, has called mental health “the defining public health crisis of our time,” and he has made adolescent mental health …

https://www.nytimes.com/2024/04/29/health/adolescents-exercise-mental-health.html

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Data Labs Pew Research Center

(8 days ago) WebThe Data Labs project both produces its own reports and collaborates with other research groups at the Center, applying new computational approaches to existing …

https://www.pewresearch.org/data-labs/

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New performance evaluation process begins May 1

(7 days ago) WebMain Content New performance evaluation process begins May 1. Published on Monday, April 29, 2024. Last month, I mentioned the upcoming faculty and staff …

https://www.umc.edu/news/Miscellaneous/2024/04/29/HR.html

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Request for Comments: PEDRI Best Practice Standards for the Use …

(8 days ago) WebTo achieve this goal, the partners are developing a guiding document called the PEDRI Best Practice Standards for the Use of Data for Research and Statistics. The …

https://www.hdruk.ac.uk/news/request-for-comments-pedri-best-practice-standards-for-the-use-of-data-for-research-and-statistics/

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NJ Catholic Hospital Initiative on Stem Cells

(5 days ago) WebDonation of umbilical cord and placenta blood is key to future usage and development of stem cell therapies. Over 20,000 babies are born in the Catholic hospitals of New Jersey each year. Obviously this number of births provides a fertile field of umbilical cord and placenta blood donation. The ethical principles of our Catholic health care

http://www.chcpnj.org/stemcell.aspx

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HIPAA Privacy Rule and Its Impacts on Research

(1 days ago) WebWhat personal health information is needed for the research study. This may include some or all of your medical records, information about the medicines you take, the …

https://privacyruleandresearch.nih.gov/patients.asp

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An FDA approved device offers a new treatment for ringing in the …

(3 days ago) WebMore than 25 million adults in the U.S. have tinnitus, a condition that causes ringing or buzzing in the ears. An FDA approved device that stimulates the tongue, …

https://www.npr.org/sections/health-shots/2024/04/15/1244501055/tinnitus-hearing-loss-ringing-ear-noise

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Elevated health risks from burn pits could affect millions of …

(1 days ago) WebThe burn pit at Balad Air Base, Iraq, in 2008. Long deployments to military bases with open-air burn pits put veterans of the wars in Iraq and Afghanistan at higher …

https://www.stripes.com/veterans/2024-04-29/military-burn-pit-health-research-13695550.html

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