Examples Of Unconsented Health Data

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The public needs to know why health data are used without consent

(Just Now) Governments and health organizations routinely collect information about health-care system use so they can manage, administer and pay for health services. This information is referred to as administrative data, and a new piece of administrative data is created every time someone has an interaction with the … See more

https://theconversation.com/the-public-needs-to-know-why-health-data-are-used-without-consent-123669

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Ethical Issues in Consent for the Reuse of Data in Health Data

(3 days ago) WebExamples of these include Dementia Platform UK (DPUK); and the MQ Adolescent Data Platform in the UK; pan-European initiatives such as the Electronic …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7862505/

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Ethical Issues in Patient Data Ownership - PMC - National Center …

(3 days ago) WebA contemporary example of health care systems targeting a vulnerable population for commercial purposes is that of recovering alcoholics and those with a …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8178732/

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The public needs to know why health data are used …

(9 days ago) WebFor example, academic researchers used unconsented data without identifying information to study the opioid epidemic. Why we have unconsented health data. Governments and health organizations …

https://www.utoronto.ca/news/public-needs-know-why-health-data-are-used-without-consent-u-t-experts

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Specific measures for data-intensive health research without …

(4 days ago) WebIntroduction. Over the past decades, the importance of obtaining consent in medical research settings has been strongly emphasized [].However, in data-intensive …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10772063/

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Patient views on research use of clinical data without consent: …

(9 days ago) WebRecent regulatory plans in Austria, for example, made front-page news and sparked both outrage and enthusiasm because they promised research use of national …

https://www.nature.com/articles/s41431-019-0340-6

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Inalienable data: Ethical imaginaries of de-identified health data

(7 days ago) WebDe-identified data may be factually alienable—it is clearly something that makes sense as an object to be transferred. However, it may be complicated in terms of …

https://www.sciencedirect.com/science/article/pii/S2667321523001051

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Secondary research use of personal medical data: attitudes

(Just Now) WebMaking routine clinical-care-data available for medical research requires adequate consent to legitimize use and exchange. While, public interest in supporting …

https://www.nature.com/articles/s41431-020-00735-3

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The public needs to know why health data are used without consent

(6 days ago) WebPeople’s data shouldn’t be. used in ways that they don’t support. Health data has a special place in this discussion given public concerns around the. world, including …

https://www.researchgate.net/publication/338659599_The_public_needs_to_know_why_health_data_are_used_without_consent

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Characterizing cyber harms from digital health Nature Medicine

(Just Now) WebOther examples of cyber health harms include those caused by the COVID-19 infodemic, misuses of unconsented health data (such as the unconsented sale of …

https://www.nature.com/articles/s41591-022-02167-6

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Class Actions Involving Health Data in the Wake of …

(9 days ago) WebClass action litigation related to data privacy and data breaches in the healthcare industry is expected to trend upward in the COVID-19 era. The spike in the use of telehealth has been one of the

https://www.natlawreview.com/article/assessing-damages-data-privacy-and-data-breach-class-actions-involving-health-data

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Perceptions of anonymised data use and awareness of the NHS …

(1 days ago) WebBackground England operates a National Data Opt-Out (NDOO) for the secondary use of confidential health data for research and planning. We hypothesised …

https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-021-00281-2

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Using Data to Reduce Health Disparities and Improve Health …

(8 days ago) Webence Health: A Framework for Hospitals for insights into how hospitals can address social needs, social determinants and the systemic causes of health inequities. Hospitals and …

https://www.aha.org/system/files/media/file/2021/03/Market_Insights_Disparities_Data.pdf

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Perceptions of anonymised data use and awareness of the NHS …

(1 days ago) WebRecommendations to guide unconsented secondary health data use included that health data use should benefit patients; data sharing decisions should …

https://pubmed.ncbi.nlm.nih.gov/34127076/

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Frontiers Unconventional data, unprecedented insights: …

(1 days ago) WebThe use of mobility and participatory surveillance data by policymakers, for example, varied greatly and was less likely to be applied at the regional or province level …

https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2024.1350743/full

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BEYOND LOCAL: What is our health data really being used for?

(9 days ago) WebHealth data can be collected with and without patient consent, and can produce significant research outcomes. The Conversation Oct 22, 2019 8:55 PM. Share …

https://www.elliotlaketoday.com/local-news/beyond-local-what-is-our-health-data-really-being-used-for-1750497

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Data Sets CDC Open Technology

(Just Now) WebData.CDC.gov is a repository of all available data sets with a Socrata Open Data API. Available categories include: Administrative, Biomonitoring, Child Vaccinations, Flu …

https://open.cdc.gov/data.html

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To Share or Not to Share: Ethical Acquisition and Use of Medical …

(3 days ago) WebHowever, the Health Insurance Portability and Accountability Act (HIPAA) restrictions allow patients to easily decline the use of their medical data for research and …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5001759/

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12. Health data National Ethics Advisory Committee

(8 days ago) WebThis chapter provides ethical guidance on collecting new data from participants and/or individuals and accessing and reusing data that has already been collected (for …

https://neac.health.govt.nz/national-ethical-standards/part-two/12-health-data

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Do We Have a Right to Mental Privacy and Cognitive Liberty?

(9 days ago) WebA right to mental privacy would protect individuals against the unconsented intrusion by third parties into their brain data as well as against the unauthorized …

https://blogs.scientificamerican.com/observations/do-we-have-a-right-to-mental-privacy-and-cognitive-liberty/

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Patient records exposed in data breaches doubled in 2023

(5 days ago) WebThe report, which analyzed data from the HHS’ Office for Civil Rights, found that more than 116 million records were compromised across 655 breaches — a …

https://www.healthcaredive.com/news/patient-records-exposed-healthcare-data-breaches-double-fortified-health-security/704917/

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The ethical use of existing samples for genome research

(2 days ago) Web1. The primary objective of ethics committee oversight is to balance the relative benefits of the research project and the risks, including privacy risks and any …

https://www.nature.com/articles/gim2009105

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ISO - An easy guide to understanding healthcare data analytics

(5 days ago) WebData privacy and security: The growing storage and use of health data has already made hospitals and practitioners the targets of cybercriminals and hackers. It is the …

https://www.iso.org/healthcare/data-analytics

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Child Abuse and Neglect Prevention - CDC

(6 days ago) WebEmotional abuse refers to behaviors that harm a child's self-worth or emotional well-being. Examples include name-calling, shaming, rejecting, and …

https://www.cdc.gov/child-abuse-neglect/about/index.html

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Privacy in the Age of Medical Big Data - PMC - National Center for

(3 days ago) WebAs a straightforward example, data de-identification is a common way to comply with HIPAA requirements—but de-identified data are much harder to link together when a patient …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6376961/

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About Reproductive Health Reproductive Health CDC

(6 days ago) WebCDC provides technical assistance and training to help improve male and female reproductive health, maternal health, and infant health. A key part of our work is …

https://www.cdc.gov/reproductive-health/about/index.html

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Leveraging data from real-world settings - STAT

(7 days ago) WebThis approach can be done using existing data sets or new ones, leveraging the insights that a real-world dataset can provide to clinical researchers to generate new …

https://www.statnews.com/2024/05/22/clinical-real-world-data-patient-experience-impact-research-innovation/

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About Adverse Childhood Experiences Adverse Childhood …

(1 days ago) WebExamples can include growing up in a household with: 1. Substance use problems. Mental health problems. Instability due to parental separation. Instability due …

https://www.cdc.gov/aces/about/index.html

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