Add Health Data Sharing Policy

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Data – Add Health

(5 days ago) WebThe Add Health study has collected data of interest to investigators from many disciplines in the social and behavioral sciences and from many theoretical traditions, making it a global data resource for over 50,000 researchers. The Add Health data is available in two …

https://addhealth.cpc.unc.edu/data/

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New WHO policy requires sharing of all research data

(3 days ago) WebScience and public health can benefit tremendously from sharing and reuse of health data. Sharing data allows us to have the fullest possible understanding of …

https://www.who.int/news/item/16-09-2022-new-who-policy-requires-sharing-of-all-research-data

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Data policy - World Health Organization (WHO)

(7 days ago) WebPolicy Statement. The policy applies to the use and sharing of data collected by WHO in, and/or provided to WHO by, Member States (see Annex), outside the context of public …

https://www.who.int/about/policies/publishing/data-policy

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Public Health Data Policy and Standards CDC

(Just Now) WebData authority will ensure that public health has the right data, in the right place, at the right time to inform decisions. Public health relies on getting data where it …

https://www.cdc.gov/surveillance/policy-standards/index.html

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WHO policy on the use and sharing of data collected …

(Just Now) Webopen data-sharing policies and positions. Scope of the policy Which data are covered by the policy? The policy applies to data collected by WHO in, and/or provided to WHO by …

https://www.who.int/docs/default-source/documents/data-sharing-policy-collected-by-member-states-outside-of-public-health-emergencies-faqs.pdf?sfvrsn=8cfad364_2

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Data Management & Sharing Policy Overview Data Sharing

(5 days ago) WebON/AFTER Jan 25 2023. NIH has issued the Data Management and Sharing (DMS) policy (effective January 25, 2023) to promote the sharing of scientific data. Sharing scientific …

https://sharing.nih.gov/data-management-and-sharing-policy/about-data-management-and-sharing-policies/data-management-and-sharing-policy-overview

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Principles for Health Information Collection, Sharing, and …

(Just Now) WebThe present policy statement first outlines some of the key equity and legal background relevant to health data sharing and responsible management. It then …

https://www.ahajournals.org/doi/10.1161/CIR.0000000000001173

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Data management and sharing policy: the first step …

(2 days ago) WebHealth-related research funders, regulators and journals are increasingly expecting that individual-level health data will be shared more widely [1,2,3]; yet, in …

https://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-019-1315-8

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Preparing for the 2023 Data Management and Sharing …

(9 days ago) WebThe NIH Data Management and Sharing (DMS) Policy was released October 29, 2020 and will take effect on January 25, 2023. Specifically, this date applies …

https://datascience.nih.gov/director/directors-blog-preparing-for-the-2023-data-management-and-sharing-policy

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Attachment A - NIH Data Sharing Policy HHS.gov

(Just Now) WebThe Policy seeks to encourage the broad sharing of scientific data with the research community and the public. [1] Central to the Policy is a requirement that investigators of …

https://www.hhs.gov/ohrp/sachrp-committee/recommendations/august-12-2020-attachment-a-nih-data-sharing-policy/index.html

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Data Management and Sharing Policies - National Institute of

(7 days ago) WebNIH has issued the 2023 Data Management and Sharing (DMS) policy (effective January 25, 2023) to promote the sharing of scientific data. This policy …

https://www.niehs.nih.gov/research/scientific-data/policy

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Data Sharing Policies and Expectations - National Human Genome …

(1 days ago) WebNote: The NIH Data Management and Sharing (DMS) Policy ( NOT-OD-21-013) went into effect on January 25, 2023. Broad data sharing promotes maximum public benefit from …

https://www.genome.gov/about-nhgri/Policies-Guidance/Data-Sharing-Policies-and-Expectations

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NIH issues a seismic mandate: share data publicly - Nature

(Just Now) WebNIH issues a seismic mandate: share data publicly. The data-sharing policy could set a global standard for biomedical research, scientists say, but they have …

https://www.nature.com/articles/d41586-022-00402-1

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Sharing Health Data: The Why, the Will, and the Way Forward

(9 days ago) WebIn the context of the COVID-19 pandemic, both data and a lack of data illuminated profound shortcomings that affected health care and health equity. Yet, a silver lining of the …

https://nam.edu/sharing-health-data-the-why-the-will-the-way-forward/

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About Data Management & Sharing Policies Data Sharing

(1 days ago) WebAbout Data Management & Sharing Policies. NIH encourages the sharing of data whenever possible. Learn about the 2003 NIH Data Sharing policy and the 2023 NIH …

https://sharing.nih.gov/data-management-and-sharing-policy/about-data-management-and-sharing-policies

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Sharing and reuse of health-related data for research purposes: …

(2 days ago) WebThis covers use in both emergency and non-emergency situations and complements the following: the Policy on use and sharing of data collected in Member …

https://www.who.int/publications-detail-redirect/9789240044968

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A guide to sharing open healthcare data under the General Data

(Just Now) WebHowever, EU laws on processing (personal) data, such as the GDPR 24, remain a challenging factor when sharing personal health data, as this means more …

https://www.nature.com/articles/s41597-023-02256-2

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Complying With the HEAL Data Sharing Policy

(Just Now) WebUnder the NIH HEAL Initiative Public Access and Data Sharing Policy, and the NIH Policy for Data Management and Sharing, all HEAL applicants—regardless of …

https://heal.nih.gov/data/complying-heal-data-sharing-policy

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The State of Data Sharing at the US Department of Health and …

(1 days ago) WebThe U.S. Department of Health and Human Services, at both the leadership and staff levels, has dedicated an enormous amount of time discussing the current state of data sharing …

https://www.hhs.gov/sites/default/files/HHS_StateofDataSharing_0915.pdf

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A Community-Centered Approach to Data Sharing and Policy …

(Just Now) WebWhile historically states have not included community members in data-sharing efforts, feedback shared by people with lived expertise is a critical data point that can guide …

https://www.chcs.org/resource/a-community-centered-approach-to-data-sharing-and-policy-change-lessons-for-advancing-health-equity/

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Genomic Data Sharing Policy Data Sharing - National Institutes of …

(1 days ago) WebGenomic Data Sharing Policy. Genomic research advances our understanding of factors that influence health and disease. To facilitate the translation of research results into …

https://sharing.nih.gov/genomic-data-sharing-policy

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JMIR Public Health and Surveillance - Now Is the Time to …

(5 days ago) WebDuring public health crises, the significance of rapid data sharing cannot be overstated. In attempts to accelerate COVID-19 pandemic responses, discussions within …

https://www.jmir.org/2024/1/e51880/

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SLSD Data Sharing Policy for Release of NASA Protected …

(8 days ago) WebNASA Protected Health and Research Information Talking Points Why do we need a policy? To ensure the integrity and protection of these data while also clarifying the …

https://www.nasa.gov/wp-content/uploads/2023/03/hhp-data-sharing-policy-for-release-of-nasa-protected-health-and-research-informationv2.pdf?emrc=6645ed281457d

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Wellstar Health System Privacy Lawsuit Data Sharing?

(2 days ago) WebIn this case, attorneys are specifically looking into whether Wellstar.org and MyChart.Wellstar.org are tracking patients in a manner that exposes their personal and …

https://www.classaction.org/wellstar-privacy-lawsuit

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1.7 Million Americans Are On Health Care Sharing Plans: Are They …

(8 days ago) WebLiberty HealthShare. , a Canton, Ohio-based sharing plan with more than 131,000 members nationwide, to cover additional services like preventive screenings, emergency room …

https://www.msn.com/en-us/health/other/17-million-americans-are-on-health-care-sharing-plans-are-they-safe/ar-BB1mnea1

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Fetterman, Smith want a Senate mental health commission

(4 days ago) WebUsing machine learning tools to assess its programs and streamline its research portfolio.; Piloting secure processes for sharing of NIH application and review …

https://www.washingtonpost.com/politics/2024/05/10/fetterman-smith-want-senate-mental-health-commission/

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Covid origins in spotlight, as feds cut funding to virus hunters

(6 days ago) WebNew this a.m.: Sens. Edward J. Markey (D-Mass.) and Sanders are urging HHS to be prepared to offer support and regulatory flexibility to prevent any loss of care …

https://www.washingtonpost.com/politics/2024/05/16/covid-origins-spotlight-feds-cut-funding-virus-hunters/

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